Hacker News new | ask | show | jobs
by martyvis 1124 days ago
Interesting. Having just been discharged from hospital after a 22 days stay, I would hope an awful lot of data is in my record. I had blood taken daily, I think standard obs (observations) at least 4 times a day, electronic scans (CT, Xray, EEG, ECG), lots of medicine via IV, oral and subcut. Multiple discussions daily with doctors and nurses (usually with the Drs, there was one asking questions, one listening, and another directly transcribing on a PC on a mobile workstation/crash cart. As meds and other care changed daily, presumably back room consulting resulted in treatment plan updates. BTW I'm very happy with the direction my health is heading, and feeling a lot better (and there is data being that up).

I haven't checked what my record is on our (Aussie) national health record yet [1]. I'll have a limited view for sure, but when I meet with my GP (general practitioner, MD, physician) to discuss my discharge summary on Monday, I might ask him to see what he has access to, and his complete it is.. I know I have been disappointed at what seemed to be quite devoid of info, despite all the controversy that ensued when it was introduced a few years back.

[1] https://www.digitalhealth.gov.au/initiatives-and-programs/my...

2 comments

So I work with Oz GP practices. It's not very likely you'll get a reasonable export of your data. It's doable, but may require some convincing. Your practice will likely get a copy of at least some of the hospital documents - that's common. You could ask for the same export of your data that they'd send when moving you to another clinic if you want a complete view (you may get it on a CD though...). It's not that there's really any issue, it's just that the staff likely never handled this request for the patient and wouldn't be sure how to do it.

There shouldn't be any issue to view all the received documents on the screen during your visit though.

Australia doesn't have a unified system. Across the ditch we don't either, but at least we have a patient identification system that allows the searching of different systems for an individual via the National health Index number (NHI).