[throwaway2037]

That is incredible. To live 27-28 years after diagnosis is a modern medical miracle. That said, I am highly sympathetic to the points that you made. Essentially, he became a vegetable: <<any kind of communication was basically impossible>>

Did you ever discuss end-of-life options with him before the disease progressed so far? I have a close relative with PD. I am terrified of the last years, but no idea how to raise the issue of end-of-life options. My family's culture is pretty much "try to live forever" instead of "try to live well". Are there any Swiss/Belgians/Dutchies here with experience on planned end-of-life options? Those three countries are exceptionally liberal on that matter.