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by landemva 1230 days ago
> If we can convince Congress

That sounds good yet in practice even medical hippa privacy is bunk. Last week I went to a big hospital for a walk-in xray. They refused to take the pictures until I consented to their standard forms which provide for my results to be given to unnamed research groups. The check-in person acted like I was the first person ever to try to strike out that part of the form/contract. They literally refused treatment and the 'patient advocate' played her role of being pleasant and clueless.

I complained to hospital licensing at State which was rejected because it was not an unsafe care issue.

2 comments

Not completely related to privacy, but I do know of one state-level initiative to enshrine into law a requirement that the state largely end the requirement of proprietary software usage to interact with the state's various digital interfaces - "prohibiting, with limited exceptions, state agencies from requiring use of proprietary software in interactions with the public" - HB 617-FN in New Hampshire.

It's not a one-and-done solution but it's a big step in the right direction for government, especially for digital privacy.

More info: https://libreboot.org/news/usa-libre-part2.html

How come you didn't want your results shared with research groups? It's not as if they're tagged with your name and SSN, are they?