| I was in a similar situation as yours for the past year or two. I'm not in the states, so I cannot provide any insight on that aspect. As Hermitian909 suggests, investing in hiring someone to assist with tasks such as cleaning, cooking, and laundry can be immensely helpful. As you have said, your employer is supportive, don't change jobs. There is no way to predict if a new employer will be as understanding and accommodating of your situation. Having a life-threatening disease means that you may have unexpected emergencies at random times and need to leave work to attend to them. Ask your employer to let you work remotely. It will allow you to provide better care for your partner. And, most importantly, spend more quality time with them. You never know when the time will change. This advice may be difficult to hear, but record videos with them. Pictures are nice but videos have something magical in them(Speaking from experience.. I lost my partner a couple of weeks ago). It is not possible for you to be with your partner constantly. If possible, consider relocating your home to be closer to either your or her family. Or you can move in with them semi-permanently for support. |