[theGnuMe]

I would worry less about the money, things usually work out. You also need to identify all of your options. Does your partner now qualify for SSI, disability and/or Medicaid? If they do get Medicaid. Otherwise the Affordable Care Act will limit your/their financial exposure as well.

Next, you need to build a support system of friends and possibly family (if they can come over for a time to help).

https://www.usa.gov/disability-caregiver

Some states have better options than others, especially for caregiving. You want to look into personal care assistants. It can be very difficult to find people but

[dumy55]

My partner is not eligible for SSI, disability or Medicaid because of immigration status. I will check about Affordable Care Act, but currently we are on employer provided health insurance plan.

I will go through the link you have posed and check the state resources too. Have not heard of personal care assistants before, but will find out more.

[theGnuMe]

You might ask your state's department of human services. If your partner is a legal immigrant they should qualify. Medicaid is a 50:50 federal and state partnership.

Another link for you: https://rarediseases.org/policy-issues/medicaid-eligibility/