[ckayatek]

I did ALS research in grad school and his case seems to be an outlier. Generally ALS is late onset (55+) and rapidly lethal (<3 years expected survival). That being said, early onset cases are often slower to progress and if I remember correctly his onset was in his late 20s, which is very early. There are really no medications or treatments that are effective for ALS, no matter how much money you have.