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by anonAndOn 1325 days ago
Sorry about your troubles. I agree with your hypothesis that COVID does more damage when given the right scaffold and that underlying conditions lay the groundwork for lasting damage. Have you considered your problems may be clot related?[0]

[0]https://twitter.com/drclairetaylor/status/158936959572682342...

1 comments

Not just considered, but seems likely. I have had a lot of trouble finding the key pair values with doctors to pursue any treatment down those lines. I also have ADHD and some other issues that make the diligent pursuit of treatment that is met without collaboration to be extremely difficult. I've found that the best way to NOT get treatment is to go into a doctors office with an idea of what might be wrong with me. I get the best results when I can compose myself enough to go in and complain about symptoms until they come up with something they think will help... which most of the time is 800mg ibuprophen or some weird pill that will reduce ear wax... but after a few visits they might say "GEE IT MIGHT BE BLOOD CLOTS".

Ugh. I'm just gonna do some deep breathing in cold baths, maybe DIY a hyperbaric chamber, get better at pullups, buy a rowing machine, and cut out sugar. Likely by the time that's effective the damage done will be compounded, but at least I won't be left in a holding pattern of how fucked US medicine is.

I'm just some random person on HN so please take this with giant heap of salt, but you've described problems in 2 of the 3 major organs in your arterial system (the third is your kidneys). FWIW, I'd encourage a Hematologist to look there.
Thank you. You might be able to tell the frustration and anxiety this stuff brings me going through it. I appreciate you talking with me about it and you're right. I should ask for a hematologist. Weird that no GP has suggested that, but seriously, you suggestion here might be the key to me living and extra 30 years. Might not, but it's one of the best key/pair value suggestions for treatment path I've heard in a discussion in some time.
DIY hyperbaric chambers can be extremely dangerous in terms of explosive decompression and fires. If you're considering building one then for the sake of yourself and your neighbors please don't try hacking one together out of plans your find online.