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by igetspam 1327 days ago
AS has actually been a discussion. She has a number of indicators that are "AS adjacent," per the last rheumatologist we saw (which I forgot about, until now). It's the best diagnosis we have but the treatments he tried had severe adverse reactions and didn't show signs of improvement. Combine that with many of the tests showing up as "close but not quite" aligned with AS, he suggested we explore other avenues because he wasn't convinced of AS.

> If I were in you, at this point I would go to some known research center with maybe a university department or ward.

That's one of the reasons we moved to New England. We wanted to be close to Boston.

This is great information. Thank you. I plan to review everything.