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by dmclamb 1334 days ago
I'm 50. Diagnosed with MS at 40. Symptoms began around 19. Still working full time but live never knowing for how much longer.

MS sucks.

Things I have found helpful for me, ymmv: cando-ms Ocrevus Ampyra Eliminate processed foods, eat lots of fruits/veggies Exercise the parts of the body that can still move John Kabat -Zinn, mindfulness meditation for pain management Sleep Get outdoors a few minutes every day Participate in clinical trials Meet with others fighting MS who still hold on to hope, and can still laugh and cry

Things I believe that may not be true EBV virus/mononucleosis plays a significant role in my MS Still unknown, but there is interesting science on this. I tried to qualify for a study on ATA188, which kills EBV infected immune cells, but did not qualify.

I wish you well.

1 comments

Thank you, all good advice.

I'm surprised with how many people get diagnosed so late. Is it failure with the medical system or were your symptoms very subtle until then?

Lastly, what treatment are you on and how has it helped? (If you can have a before / after distinction)