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by dmclamb
1334 days ago
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I'm 50. Diagnosed with MS at 40. Symptoms began around 19. Still working full time but live never knowing for how much longer. MS sucks. Things I have found helpful for me, ymmv:
cando-ms
Ocrevus
Ampyra
Eliminate processed foods, eat lots of fruits/veggies
Exercise the parts of the body that can still move
John Kabat -Zinn, mindfulness meditation for pain management
Sleep
Get outdoors a few minutes every day
Participate in clinical trials
Meet with others fighting MS who still hold on to hope, and can still laugh and cry Things I believe that may not be true
EBV virus/mononucleosis plays a significant role in my MS
Still unknown, but there is interesting science on this. I tried to qualify for a study on ATA188, which kills EBV infected immune cells, but did not qualify. I wish you well. |
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I'm surprised with how many people get diagnosed so late. Is it failure with the medical system or were your symptoms very subtle until then?
Lastly, what treatment are you on and how has it helped? (If you can have a before / after distinction)