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by mush_room
1334 days ago
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Hey, I appreciate both of you; I wouldn't characterize the parent as unethical, he seems like a real person with a story, on the surface I have doubts it could work for me, but I won't rule it out, if only I had the financial means to try. You're not entirely wrong about your assessment, when I first got diagnosed I was quick to believe anything that would promise help, and even followed through with some (pricy and ineffective) treatments like CCSVI procedures (which were even discussed here on HN back in the day). |
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Here is the problem: OP doesn't have the time. In such a situation, even if you have the money, you can afford to try one or two things long term, maybe three if you are lucky. If those turn out to be nonsense, that's it, you're dead or paralyzed or demented. You can't afford some esoteric nonsense in the bush because some stranger on the internet recommended it and a sketchy website pushed it.
It's really sad that dubious actors are making a buck off of desperate patients and that's just as immoral as a dysfunctional health system.