Hacker News new | ask | show | jobs
by mush_room 1334 days ago
Hey, I appreciate both of you; I wouldn't characterize the parent as unethical, he seems like a real person with a story, on the surface I have doubts it could work for me, but I won't rule it out, if only I had the financial means to try. You're not entirely wrong about your assessment, when I first got diagnosed I was quick to believe anything that would promise help, and even followed through with some (pricy and ineffective) treatments like CCSVI procedures (which were even discussed here on HN back in the day).
1 comments

> but I won't rule it out, if only I had the financial means to try.

Here is the problem: OP doesn't have the time. In such a situation, even if you have the money, you can afford to try one or two things long term, maybe three if you are lucky. If those turn out to be nonsense, that's it, you're dead or paralyzed or demented. You can't afford some esoteric nonsense in the bush because some stranger on the internet recommended it and a sketchy website pushed it.

It's really sad that dubious actors are making a buck off of desperate patients and that's just as immoral as a dysfunctional health system.

I am OP :). I really hope the future isn't so grim, I mean, to be honest it's me rejecting what is the most common outcome for people with MS, slow degradation. It pains me because just 3 years ago I was feeling so good, my brain was working great (due to a mix of circumstances, financial windfall, low stress, and pretty certainly a great mix of diet and exercise), I had so many product ideas and the energy to pursue them. Anyway, I digress... The thing is, as far as I know, no non-esoteric options provide what I'm seeking. As I've replied elsewhere, my initial intention was to collect (even very speculative) hints to future research and treatments that might do what current ones don't: restore, repair.
Oh I missed that, sorry. All the best to you!