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by zibby8 1368 days ago
Again, I think you just have your own definition for long Covid. The CDC does not share your definition: https://www.cdc.gov/coronavirus/2019-ncov/long-term-effects/...
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Long covid is a patient community driven term relating to the ME/CFS class of symptoms. The CDC is using it incorrectly.
Mayo clinic also conflates "long covid" and PASC: https://www.mayoclinic.org/diseases-conditions/coronavirus/i...

As does Johns Hopkins: https://www.hopkinsmedicine.org/coronavirus/pact/index.html

Something to consider: maybe it's your usage of long covid that's incorrect?

See https://youtu.be/tFQBcu5qlmE?t=485 for a breakdown of terminology. This is how it started and where it is going back to. This is a bit of history that I've personally lived.

If you investigate you'd probably be surprised just how behind the 8-ball these institutions are. Their inability to predict the bleedingly obvious as corona viruses have a history of triggering ME/CFS. Their many decades of gaslighting patients and recommending harmful treatments such as exercise and cognitive behavioural therapy.

Those of us from the ME/CFS space knew this was coming and knew people with Long Covid were going to be gaslit so we've been educating them on what to expect and how best to treat it. Plus we don't mind that they're rebranding ME/CFS as Long Covid as we'd like these institutions to actually do their job and do some research. We're not expecting an apology for the decades of gaslighting. The main thing we want is for people to not waste time rediscovering what we already know. Conflating the Long Covid (ME/CFS) part of PASC with the organ damage part muddies the water and diminishes focus.