[makeitdouble]

> get express informed consent that indicates that their data will be public and that it could be linked back to them.

10~20 years ago I could see it. Nowadays it’s a tough ask that would severly limit the number of people participating. This could also steer away most minority groups, which would make the research not only limited, but also misleading (we’d still draw conclusions from them, and decide policies accordingly, even as they come from grossly biased participant pools)

Aside from just the public aspect of having ones data in the open, there is also second/third order discoveries that would happen from there (e.g knowing someone’s cooking habits could be enough to deduce overall health status, potentially chronic illness, ethnicity/religion, relationship status etc.)