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by vimy 1446 days ago
Fibromyalgia, CFS, .. labels like that are used when the doctors have no clue, just give up and don't wanna look further into your issues. Then they blame it on stress and psychological issues. That's 1000 % wrong.

Most likely you have a virus or bacterial infection that hasn't been detected yet. I'm in a very similar situation like you so I'm speaking from personal experience. Ever been bitten by a tick? Do you have gut issues?

Read this, very important: https://www.hardtowrite.com/pathogens/

As for earning money: Assuming you're too unwell to consult, you can do mindless tasks on Appen. https://connect.appen.com/qrp/public/home Things like checking search results for Bing or Google, improving Apple & Google maps. Pay is between $15, $24 / hour depending on the project.

2 comments

Doctors checked me out for various things and then sent me to a psychologist who declared I had “health anxiety” when I was developing adult-onset type 1 diabetes. I had been in pain for months, every day, and lost tons of weight, then turned it around with a very specific diet (coincidentally low carb) and they acted like I was just being paranoid about food. It’s maddening how some doctors, for one reason or another, disregard almost anything a patient says.
You should all (also OP) look into Fabry. It's a genetic disease which for some only shows up in adulthood. My Mum went through decades of chronic pain and though she had Fibromyalgia. There are dozens of papers showing how Fabry is often misdiagnosed as Fibro.