Hacker News new | ask | show | jobs
by scrozier 1468 days ago
I'm a software developer by trade. I've had essential tremor all my life. Virtually all doctors say, "well, at least it's a benign condition." Right. And it's affected my life in countless ways, none of them good. It's gotten slowly worse over the years. It's not debilitating, but it's frustrating, and it rules out some activities completely. As I type this I randomly touch the touch pad or an unwanted key, and random things happen. :-)

Your software looks amazing for me! Your web site describes my situation exactly. It looks like it's Windows only? Any plans for a Mac version?

Edit: I accidentally posted a truncated version of this earlier (I deleted it), exactly because of my tremor!

6 comments

I know how hard ET is and I really feel for you. My dad’s ET started getting worse at around 40 and when he reached 65 it got to the point where he couldn’t eat without much difficulty, couldn’t write a simple note, use his phone to text, and many things we take for granted and it stressed him out to the point where he started to isolate; he lost motivation completely. It broke my heart and in 2018 I decided to call and email pretty much every doctor around the world who knew anything about ET and after many emails and phone calls I found a surgeon in South Korea and Florida who agreed to see him. A few months later they performed a non-invasive brain operation that totally cured the ET in his dominant hand (they couldn’t do both). It saved his life.
Deep brain stimulation. Brainwave entrainment. This is technology that really should be talked about more. Look it up on Google Scholars to see the research and results it has on many things such as, sleep disorders, concentration, learning, even found to reverse Alzhiemsers. It is so simple you can treat yourself from your cell phone. Deep brain stimulation is the same only they use magnetic pulses. Please look this up.
Can you elaborate on what the non-invasive brain operation was?
Non-invasive wow! Could you provide more details on it?
I'm interested, too, but it might be a loose term - sometimes people say "non-invasive" to mean "minimally-invasive" or such. So something that involves opening the skull and placing electrodes on the surface of the brain can be considered "non-invasive" to the brain matter, and endoscopic endonasal surgery is much less invasive than going through the skull.

In fact, "non-invasive operation" is oxymoronic, because an operation or surgery is a medical treatment that is invasive.

Your mileage may vary, but I had the same issue and it got fixed after I started lifting and developed more muscle all over my body, especially in the core.

It’s like the nervous system can’t just jerk my hand around if there is more muscle for it to control.

Now my firearm accuracy makes everyone jealous at the range, people are like “wow, you’re such a natural”.

I'm curious. Would some sort of intentionally-activated eye tracking work? Do your eyes have tremors?

Ideally (there's a pun in there, but it's not intentional) we could use our eyes to signal where we want our "focus" to be, but only when we want that signaling to happen. So a simple button held to indicate "track my eyes and focus on where I'm looking when I lift the button" might be useful.

The FAQ suggests a MacOS port is “underway:”

https://www.steadymouse.com/faq/

Same here. Mine isn't debilitating (yet, maybe). But there are definitely times it's a real pain, and nobody really seems to understand what it's like to have. And in public it gets annoying because older people will come up to me sometimes and tell me "did you know / do you know if you have Parkinson's" even though it's ET.
Any idea what causes this?