[relaunched]

I'd apply to be seen at the Mayo or Cleveland clinic. While it sucks that there is a patient selection process, once you are in, they can line everything up, over a a few days, and get you an answer - at least all the testing will be done. They do have telehealth options and I found the digital experience compelling.

I'd second the medical tourism, but I've never done it myself.

I'm a patient at the Mayo.

[codingdave]

Yes, this is the same answer I would recommend (and I have also gone to Mayo for my own pain problems), but be aware that not everyone just walks in, gets tests, and gets an answer. Some of their departments are more booked than others, so while you can show up for a few days and get a slew of tests, half of your time on those days will be sitting in waiting rooms hoping one of the specialists in a booked department has a cancellation and can see you on the fly.

Also, just because they run all the tests and are great at what they do does not mean they will have all the answers for every patient. They have a fast-paced machine to crank you through which will help many people, but not all. Set your expectations accordingly, and be prepared for any result including more of, "The specialist you need is booked, come back in a few weeks."

I 100% agree to go there and get all you can from it. Just don't walk in expecting a quick easy miracle.