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by robertrmorris 1541 days ago
Thanks for the question. I’m going to interpret this broadly and try to go from there, but let me know if you had something more specific in mind.

TL;DR At a high level, for people who complete our interventions, we see 71% feel more hopeful, 42% feel better about their bodies, and 67% feel less self-hatred. Completion rates range from 25-55%. Outcomes would most likely be lower for those who dropout prematurely.

More specifically:

We track multiple outcomes, depending on what the user may be presenting. If they are experiencing suicidal thoughts, we track conversion to crisis lines.

See here: https://psycnet.apa.org/record/2019-14424-004

We follow-up 5hrs later and ask general questions about their experience with the life line.

If they are experiencing self harm, in addition to crisis lines, we offer them a single-session online intervention on managing sh. For that, we see significant improvements pre vs post on measures like “self-hatred”, and “desire to stop selfharm”, with medium effect sizes (.4-.8 cohen’s d). Very hard to show enduring effects for this, however. This research, as well as our work on disordered eating, is still in prep.

For peer support, we have previously published data here: https://pubmed.ncbi.nlm.nih.gov/25835472/

And here: https://pubmed.ncbi.nlm.nih.gov/28903637/

For our interventions on mood and stress regulation, we’ve adapted single session interventions, alongside some wonderful collaborators at Stony Brook. They have published their work here: https://www.nature.com/articles/s41562-021-01235-0

1 comments

> We follow-up 5hrs later and ask general questions about their experience with the life line.

> If they are experiencing self harm, in addition to crisis lines, we offer them a single-session online intervention on managing sh. For that, we see significant improvements pre vs post on measures like “self-hatred”, and “desire to stop selfharm”, with medium effect sizes (.4-.8 cohen’s d). Very hard to show enduring effects for this, however.

Are you measuring in such a way that you can realistically determine which effects are due to the online intervention and which are due to the SH itself? I ask because after SH, especially a few hours later, I consistently have increased "desire to stop selfharm", and lessened "self-hatred". SH has that effect on me, hence its unfortunate use as a coping mechanism.

Good questions. And your experience makes a lot of sense. Ideally, we would see positive changes persist over many time points (and so we aren't measuring immediately before self-harming and immediately after). I'd be really grateful if you tried it provided some feedback for us: https://join.kokocares.org/koko-referral-lifelines?source=hn

Scroll to the bottom to try the "managing self-harm" mini course. It only takes 7-8min and there is a spot for feedback at the end.

Thanks for the reply.

When I click on the "managing self-harm" course, I only see a "form.typeform.com refused to connect" error. Seems this is because I'm using tor, which is the only way I'd feel comfortable legitimately using the service. Would be nice if there were a way to use the service via tor.

I did complete the course. All the negativity coupled with "it's easy!!" made me feel worse, but sounds like I'm an outlier. Is there a reason there are no positive statements in the course, like "I think I'm a good person"?