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by tedyoung 1552 days ago
Came here to say this. And not just preventing patient access to the data, but locking the ability to change settings in a reasonable manner, without having to con$ult with a "doctor" (really an admin at the doctor's office) for each tiny increase in air pressure. It's one of the reasons I gave up on the whole CPAP thing.
2 comments

Same, until I realized it's just a key sequence to get in to the machines.

For me it's hold two buttons down to reveal the settings. Navigate to the setting, change the setting. Done. Fisher-Paykel.

I think they lock this behind this setting because they don't want amateurs blowing out their lungs.

~liability~
I’m in favor of people being able to get the data from their machines, but letting users manipulate the prescribed CPAP settings related to pressure and flow? Someone is going to get killed.
Do you use a CPAP machine? It’s a simple device that blows air through your nose hard enough to keep the airway open. It doesn’t take an intelligent person to operate or adjust one. One would have to be one of them dumbest people in human history to cause injury with one, let alone kill yourself.
Patients are in a far better position to manipulate their machines than doctors are. Doctors barely look at the data, maybe twice a year for literally 30 seconds. They meet with the patient for five minutes. A lot of patients are prescribed CPAPs from pulmonologists who don't specialize in sleep disorders and aren't even qualified in any meaningful sense.

I move around a lot so I've been to a bunch of doctors for apnea, and I assure you that I am better qualified than most of them to review my data and adjust my machine.