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by Teever 1553 days ago
I would consider cystic fibrosis to be cured when there are no longer any carriers on the planet who could procreate and make another person who will suffer from that terrible affliction.

> Why do you get to choose? Have you ever asked one of these people if they find their lives to be meaningless? How about their parents?

My hope with this technology is that we can give prospective parents the kind of tools that allow them to make reproductive choices that best reflect their desires and hopes and dreams for their children. The question of course is what are they going to do with these tools? Will they eagerly use them or throw them away in disgust?

And then what do we do as a society in response to that?

Is it legal to feed your new born child alcohol? Is it legal for pregnant women to drink alcohol? Is it legal for two cystic fibrosis gene carriers to knowingly produce a child who will suffer from cystic fibrosis? Is it legal for someone to modify their embryo so that it turn into a child that will be a cystic fibrosis carrier? Is it legal for someone to modify their embryo so that it turn into a child that will suffer from cystic fibrosis?

Which of these things should be legal and which shouldn't? How do we enforce them?