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by jamesvnz 1590 days ago
That was a detailed post. Fellow kiwi and parent of a T1D diagnosed at the same age. Our kid is now 16, so I'm pleased to have the toddler years behind us. That said, teenage years bring different challenges.

I wish we'd had the option of a CGM at diagnosis - despite the various challenges they simplify so much. We were early into pumping - around age 4. Now using closed loop CGM + pump.

There's a good T1D subreddit for tips and advice. My one bit of advice, is that if you're having issues with bolusing before a meal and the kid then doesn't eat, is to bolus after or split bolus. It's not ideal, but it's massively better than cranking them full of insulin for them to then refuse to eat.

Good luck!

1 comments

We are very lucky for the state of the technology at the moment, and that we can afford it. I spent a lot of the time at the hospital on the subreddit, seeing people living and being happy with it was very good for my morale. We are 100% trying the split bolusing after he went low tonight from not wanting to eat his food. He doesnt mind the injections too much, especially if he is eating cheese or has "wheels on the bus" on the TV :)