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by throwaway2474 1621 days ago
Australian with pericarditis here. Both my cardiologist and GP told me they’ve seen a flood of patients (mostly 30-something men) and both told me separately that the published numbers are obviously wrong.

What I think is occurring, at least in the case of myo/pericarditis, is that nobody reports cases unless the outcome is really bad. GPs do not habitually report to the TGA, and most specialists don’t either. So the official numbers are really only those who went to hospital and it was bad enough that someone bothered to fill out the TGA form.

3 comments

The TGA reporting is incredibly easy so that is disappointing. Speaking to my sister (cardiologist) and colleagues in GPland and physicians training I have not heard this - although I am easily able to accept that peri/myocarditis in its mild to moderate forms is more prevalent than the reported instances. I don’t wish to minimise your own experience but think the real crux will be if broader, more significantly lifelong autoimmune conditions develop.
Here in the US, the VEARS system is pretty easy to file a report. It suffers from severe under reporting.
At least you got a diagnosis. I know someone having the symptoms of a pericarditis for several weeks now but the doctors don't acknowledge them, telling they were merely pycholocial. If nobody reports these issues then they won't be widely known and they won't be treated.
Same here in the US with VAERS.