[plekter]

I totally agree that the existence of these drugs make the world a better place. I also totally agree that there should be significant financial upside to developing drugs like these, after all we do want to incentivise making the world a better place. But surely there must be a middle ground? This seems to be priced by a "what are people willing to pay for this?"(a lot, given its life saving/changing nature) vs "what do we need to charge for this, including a healthy profit for everyone involved". (much less, presumably?) I fundamentally dislike, from the perspective of the patient, the thought that precisely /because/ the drug is desperately needed by someone through no fault of their own, it /deserves/ to be expensive.

The foundation getting a cut of the success and reinvesting in new opportunities sounds good though, thanks for pointing that out!