| >And therefore the consensus articles would say "do therapy". But they don't. The problem is twofold. [1] There is a widespread prejudice against psychosomatic illness. and [2] There have been some mis-steps, e.g. PACE trial which put deconditioning and fear of activity front and centre. This caused a huge and predictable backlash, as clearly some fear of activity is rational with this illness. >why wouldn't you see a tsunami of self reported or clinically measured recoveries? We do. See for example: https://www.recoverynorway.org/ https://cfsunravelled.com/cfs-fibro-recovery-stories/ https://www.amazon.com/Recovery-CFS-Personal-Stories-Paperba... But due to the prejudice, most people just get on with their lives once they recover. When you put your story out there (as I have done) you get hit with a huge ton of personal attacks and abuse. People deny you had the illness in the first place and they say incredibly nasty things about you. I see this on a daily basis. >Because you'd think the MDs that work in this space would know about it and center their care around it. Id argue it doesn't exist, it's just internet warriors making stuff up. You do see some. Fred Friedberg. B Van Houdenhove. Wyller. etc. But most patients hate these people, or at least actively ignore them, because they simply don't believe it. |