Hacker News new | ask | show | jobs
by watersb 1719 days ago
A degenerative brain disease, cause unknown, no treatment, dementia in early age 30s.

Following a surgical procedure for heart problem, which was relatively easy for current medicine, it's as if his brain didn't come back, his personality changed, he was losing the ability to be himself.

Horrible, but real.

Also today I sat with a close family member as they received a diagnosis for a serious psychiatric illness. Treatable, but the drugs currently available have rough side effects. It's not going to get easier.

The article characterizes Halloway's disease as a "rare" disorder, only one in 5,000 people.

But it really seems as if the bigger picture, of everyone currently sidelined with "Long COVID" or chronic mental health conditions or both... Well, it's less rare than I might like it to be.

1 comments

> Following a surgical procedure for heart problem, which was relatively easy for current medicine, it's as if his brain didn't come back, his personality changed, he was losing the ability to be himself.

From the article it seems the problem manifested years before the surgery. The surgery only accelerated the decline.