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by bradknowles
1759 days ago
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Okay, so you have Anti-Phospholipid Antibody Syndrome in the system. How does someone know to search for this, compared to the other, much more common Lupus-related diseases? I mean, even the TV show “House” featured this one. And how do you not have the internationally renowned Dr. Reichlin in Oklahoma City in the system as one of the world’s leading experts on the disease? How do you not have Lipodema or Lymphodema in the system? And if you did, how would someone know to search for a doctor with those specialties? What about fibromyalgia? Or erythromelalgia? And these are just the rare diseases in my own family and that of my wife’s family. And finally, how do you determine that someone is an actual expert in a given field, or how they rate in that field compared to others? |
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Dr. Reichlin died in 2018. That's why he's not in the system.
Lymphedema is here: https://docone.io/search?code=D008209&term=Lymphedema&limit=...
Fibromyalgia is here: https://docone.io/search?code=D005356&term=Fibromyalgia&limi...
Erythromelalgia is here: https://docone.io/search?code=D004916&term=Erythromelalgia&l...
Please let me know if you want me to help with searches for your family. As I said, I know this is version 1.0 and not super user friendly yet.
About page goes live in a week and will explain more on expertise scores. Our platforms incorporates the entire medical knowledge in it to compare the expertise that's needed for a certain condition with the expertise that a physician has.
It's not perfect, but I'd love to hear a comparison to other doctor searches. Thanks.