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by fellowniusmonk
1799 days ago
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I was born with multiple heart defect. I've had so many surgeries I wasn't sure I'd wake up from, in fact my first surgery was at 3 and is my first memory, for a couple weeks out of every year I practically live at a cardiologist.. it's funny talking about waiting for a package. Most things roll off my back but waiting.. for packages, waiting in line, etc. drive me nuts. I could die at any second, I want to experience all the things, I'm eager to live. I think when you really are inescapably a dead man walking your priorities change but not in the same way as a healthy person who is freshly confronted by their mortality. It's two distinct paths of human experience. Life goes on and nothing has meaning unless you ascribe meaning to it. It feels to me that most people forget to live, they don't even know what they value, they don't know what life or world constitutes a beautiful life/world to them. |
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Haha--I'm glad you also brought up the packages and waiting in line. It's such a strange annoyance. Like you said, you experience multiple surgeries per year, yet you still experience the same frustration with the packages! I find that incredibly...reassuring is the word that comes to mind. That hopefully means I'm not just some impatient, sulky person, and that we all experience similar day-to-day annoyances, no matter who we are or what our situation is.
Has having the heart defect had a noticeable "outcome" in your life? I guess what I mean is: Do you feel you've made different, better, more conscious choices about school, career, friendships, relationships, etc. due to your having this condition? I think most of us imagine that if we were suddenly diagnosed with a terrible illness or condition, we'd probably start immediately prioritizing things, maybe even quit our jobs, etc. But I'm also suspicious if that's really true. I'd love to hear your thoughts on this.