[sschueller]

Wouldn't it be easier to raise funds and lobby Congress to get laws passed to make insulin basically free in the US and defacto pushing that globally?

Trying to make your own has a lot of steps that need to go right or people die. You also have to deal with regulators.

[RvdV]

> and defacto pushing that globally?

There is no need for a global push; prices outside the US are substantially lower already. See https://pharmanewsintel.com/news/insulin-prices-8x-higher-in...

[after_care]

There are other benefits besides price to open source.

[project2501a]

Such as?

[steveklabnik]

Here's one that isn't about the insulin itself, but is about diabetes.

Some diabetics use a "continuous glucose monitor" to read their blood glucose levels regularly. The information to that device is fed into an app on your phone (for newer devices) that visualizes the data for you.

It doesn't just visualize though, it can also give you alerts. This is an incredibly useful feature! Unfortunately, at least in the ones I have experience with, the metrics they give you to be able to alert on are not good enough. For example, you'd think that "give me an alert when I go below x value" is a useful alert, and it is. However, the app I use only lets me set two alerts: a "low" alert, with the values 100 to 60, and an "urgent low" with the values 55-40. (both are in increments of 5.) That is useful, but what if I want three alerts? What if I want a non-5 value? Sure, you can argue that this isn't necessary, but if it were open source, I would be able to build something to do exactly what I want.

Okay, so that's the first issue here. But here's the real issue: the absolute value is useful, but what's more useful is the rate of change. What I truly want to be able to do is set an alert that says "hey if this suddenly drops 10 points, give me a high priority alert" no matter the absolute value. There have been situations where I've seen a sudden downturn from ~180, dropping by 15 each time, and you don't even know until it crosses that 100 threshold. Likewise, I've seen alerts about it going low because it went from 101 to 100. One of those is very serious, and one of those is irrelevant.

This stuff would significantly increase quality of life. And it's one tiny part of this whole picture of this one condition.

[ZucchiniZe]

I know exactly that pain! I wish that there was some way for an alert if I'm dropping super drastically.

I'm actually working on reverse engineering the dexcom share api in my free time to create something similar to sugarmate where you can get control of your data and do what you want with it.

But for the time being, have you considered using share2nightscout[0] and grabbing the info into your own control so then you can do the alerting and analysis that you want?

[0]: https://github.com/nightscout/share2nightscout-bridge

[steveklabnik]

I have not personally seen this! I will check it out, thank you!

[igorzx31]

Taxes outside the US are far higher.

[steveklabnik]

Yet somehow, we pay more for far worse care. Funny how that works.

[sschueller]

This may be true for some places but I can tell you with certainty that they are lower in Switzerland especially for lower incomes.

Your Taxes are insane high for medium wage workers and practically non-existent for the wealthy. How is anyone ever supposed to climb the ladder like that?

[pedrosorio]

> Your Taxes are insane high for medium wage workers

A single person earning $200k in the state of Washington pays ~$52.5k in federal income tax and social security. An effective tax rate of 26%. Is that insanely high?

[aabaker99]

You may want to update your idea about what is a medium wage worker:

https://www.statista.com/statistics/203183/percentage-distri...

[pedrosorio]

I am well aware $200k is nowhere near the median wage.

The person I replied to wrote “How is anyone ever supposed to climb the ladder like that?”. Seeing as no one is “climbing the ladder” from earning a median wage their whole life, I looked at the tax rate for an “upper middle” wage salary (which anyone can earn even if their parents had 0 wealth).

Since tax rates for a median salary are much lower than this, I am not sure how it contradicts my point.

[burnished]

Yeah pity those poor fools with their.. stress free access to insulin and.. never having to watch a loved one die from not being able to afford insulin. But yeah, taxes.

[marcusverus]

By pretending that this is some kind of common occurrence, you are engaging in fearmongering. You're 10X more likely to be killed by lightning in the US than you are to die due to lack of insulin.

According to this (sympathetic) website[0], ~4 people in the US die every year due to a lack of insulin. Meanwhile, ~40 people in the US are killed by lightning strike[1].

[0] https://rightcarealliance.org/actions/insulin/ [1] https://en.wikipedia.org/wiki/Lightning_strike#Epidemiology

[steveklabnik]

These things are never cut and dry. This is presenting these absolutely clear-cut stories, but it's not like this sort of thing is accurately tracked in any way.

One in four people who have diabetes report that they take less than they should due to cost. This has knock-on long-term health effects that can cumulate in an earlier death than would otherwise happen. Those effects will never be captured in the way that lightning strikes can be captured.

Others die who were never formally diagnosed, and so wouldn't be captured in statistics like this.

It goes on and on.

[anonAndOn]

>You're 10X more likely to be killed by lightning in the US than you are to die due to lack of insulin.

But 100,000x[0] more likely to lose a foot due to lack of insulin than by getting it cooked off by a lightning strike.

[0]Estimated. Not sure if they even track loss of limbs by lightning strikes since it's such a rare occurrence but the diabetic, poor and footless can be found in just about any major city.

[_xy8h]

Yet somehow the US spends the most per person health care...

($10,623.85 per capita vs Switzerland $9,870.66 vs Norway 8,239.10)

And manages to NOT cover 30 million people...

(10+% vs Switzerland, Universal, vs Norway, Universal)

No matter how you look at it, we spend more on private insurance than anywhere else in the world and manage to cover less people with it.

On top of that, medical debts are the single largest cause of bankruptcies in the US.

(Third overall worldwide ranking for US vs 100th for Switzerland vs 118th for Norway)

And despite (oh mer ghurd socialism!) paying the most, we rank among the worst for first world countries.

(37th for United States vs 20th for Switzerland vs 11th for Norway)

TLDR: We pay more for less and get worse care overall.

If I could trade in my private insurance premiums for taxes and get better care as a result without the risk of bankruptcy, why wouldn't I? Bonus, I wouldn't lose my health insurance if I had to switch jobs. We are one of the only countries in the world that tie health care to employment, which is detrimental to everyone.

The US system is FUCKED.

https://worldpopulationreview.com/country-rankings/best-heal...

https://worldpopulationreview.com/country-rankings/medical-b...

https://www.cnbc.com/2019/02/11/this-is-the-real-reason-most...

https://aspe.hhs.gov/system/files/pdf/265041/trends-in-the-u...

https://data.worldbank.org/indicator/SH.XPD.CHEX.PC.CD

[heavyset_go]

Healthcare outcomes, quality of care, and wait times are worse in the US compared to countries with universal healthcare, as well.

[techrat]

There's always the people who chime in about "but, but, but private insurance means you don't have to wait 6 months to have surgery!"

I had to wait year. US Health Insurance is a fucking nightmare to deal with that the largest allocation of man hours within a hospital is billing between multiple networks. Imagine the savings on that alone if coverage was universal.

[heavyset_go]

I waited on a six month long waiting list to see a pretty common type of specialist in the largest metro area in the US. Every practice and doctor I got in touch with had a similarly long waiting list, even if I paid in advance with cash. Some people will die waiting on that list.

[chrisseaton]

> lobby Congress to get laws passed to make insulin basically free in the US and defacto pushing that globally

You think the US should make insulin free and then use their leadership to encourage other countries to do the same?

Do you realise other countries already make insulin free and it'd be the US that would be following their leadership if it made it free?

[dsr_]

Shh! You can't get Congress to vote for "catch up with the rest of the world", you need to phrase it as "America leads the way to freedom!".

[pankajdoharey]

Yes thats the right way, making Healthcare free for all is the only way, US has to learn from Canadians, Brits or dozen other EU countries.

[consp]

"free" is relative. For instance we have a tax on chronically ill people here called "eigenrisico" (literally your own risk) which is not a tax but is meant for people to not seek help unless it is absolutely necessary and then pay for the cost. Some things are excluded but as soon as you need more than basic help or any medicine it comes into play. So it's a tax on being ill in all but name since it resets every year.

So "free" comes in many forms, not all single player.

[caddybox]

I'd be wary of calling it a tax. As you pointed out it's an amount large enough to warr off spurious medical needs and small enough that if you're really injured or suffering, it can be extremely helpful and is a miniscule part of your medical fees.

What's broken is the huisarts system where any efforts to get specialized care when you're in pain must pass through your GP. This often leads to a longer waiting period that can be excruciatingly painful for some.

[relaxing]

In the US it’s called “needing a referral.”

[kube-system]

The literally translated equivalent in the US is a “deductible”.

[sebmellen]

“Eigenrisico” yes, but the Huisarts system is what GP was referring to as being analogous to “needing a referral”.

[neolog]

It's called a deductible in usa.

https://h4i.nl/2018/11/30/health-insurance-understanding-eig...

[kwhitefoot]

Does eigenrisico apply to each event separately or is there an annual limit?

We have a similar idea here in Norway. I pay about 20 euro to visit my GP and I pay for drugs. An MRI costs me about 25 euro. But there is a limit of about 200 euro per year. Anything I pay over that will be refunded in the tax settlement for the year and if I have a chronic need for drugs I will be given a frikort to exempt me from paying for them at the pharmacy.

[gattilorenz]

In NL eigenrisico works like you describe (well, actually, it doesn't: after the eigenrisico you don't pay for stuff anymore, the insurance company covers the cost directly and you are not even billed), but is 350 euro, annually

[sschueller]

They have that in the US as well. It's called a copay I believe and it depends on insurance but is also do prevent people from going to seek help if it's minor.

[nomercy400]

Did your intentionally leave out the annual 'basic healthcare' package of around 1500 euro you are required to have? It's not free.

[contravariant]

Though with all other subsidies etc. it's effectively not that different from an additional income tax. To the point where I wonder why they don't just make it part of the income tax.

[freemint]

Certain communities such as the Amish have in the past and will in future go to DC and protest. They see it as an attack on their way of life which it is. It is just that there way of life is build on perpetuating the way of life of the Amish.

[contravariant]

Well yes I was talking about the Netherlands where you have a mandatory insurance, guaranteed to be the same amongst all insurers and for which the cost is subsidized for people with low or no income.

At that point it's basically an income tax.

[ekianjo]

because sure, we all know that health care and drugs cost nothing to make. i want to have free food too and free houses too, please add that to the list.

[_woqx]

Works great here. It is paid for in taxes and the government doesn't take a cut every step, so the tax isn't that high.

Also, food stamps etc are already a thing, and insulin is necessary to, like, live.

[igorzx31]

The middle class in europe pays 40-50% income tax rates.

[sk0g]

Don't see a single country [0] where that's true, and that's for average wages, which tends to be higher than the median wage. Mind you, the first infographic includes employer taxes as well, which should be left out of the discussion.

[0] https://en.wikipedia.org/wiki/Tax_rates_in_Europe

[ric2b]

I live in Portugal and 40 to 50% on the middle-class is actually low-balling it by ignoring things like VAT, social security, the employers side of income tax and a bunch of other taxes.

[project2501a]

you guys are great at refuting those people with facts. Keep at it!

[ekianjo]

free housing where?

[DarkWiiPlayer]

This isn't a matter of free healthcare; it's a matter of getting rid of bullshit patents and licensing problems that allow companies to pull off their absurd prices in the first place.

Insulin should be free for everyone to produce and to sell, then prices would go down on their own.

Of course, this doesn't mean the USA shouldn't implement "free" healthcare like we have in europe; just that that's not what the insulin problem comes down to.

[ekianjo]

Insulin has no patents anymore though. But making insulin reliably at the right quality is no easy feat. Thats why you dont have millions of insulin suppliers worldwide.

[tomcooks]

Would be US only VS an open solution accessible internationally.

Plus good luck getting political traction (especially against lobbies) faster than do it yourself

[systematical]

Big Pharma says no. The American solution is go to Mexico or Canada (can't right now).

[ekianjo]

make it easy to freely trade drugs between countries and prices will plummet.

[LambdaComplex]

Personally, I value human life much more than I value corporate profit.