[doggodaddo78]

I just had a sleep study with EEG and visual/audio recording. They said sleep efficiency of 95%, yet I almost always wake-up very tired, with a dull/stabbing headache, and sweating around the neck.

I also have physiological anxiety, treatment-resistant depression, attention/concentration/alertness/consciousness/memory deficits, tachycardia >100, rapid shallow breathing, high blood pressure (diastolic), veinous insufficiency, cold hands (but normal perfusion), almost no sensation anywhere, excessive sweating w exertion, lower blood volume, swelling neck/fingers/toes, and flushed forehead/ears/cheeks.

I wonder if it's a lack of exercise, chronic blood-vessel narrowing, and/or chronic low blood volume.

[atatatat]

Live in a different environment for a few days to a week to rule that out.

[disabled]

That sounds exactly like dysautonomia (autonomic nervous system dysfunction/disorder), and specifically POTS (postural orthostatic tachycardia syndrome).

I have a rare form of dysautonomia. It is a very rare immune-mediated neurological disease affecting my peripheral nervous system, called autoimmune autonomic ganglionopathy. It is in pharmaceutical remission, which means that it hopefully stays in remission, as long as I take medicine for it, for life.

Anyways, I can help you out with all of this, and really show you the way. I literally have all of the above symptoms. Check out my profile for my email. I will respond to you with advice.

You may want to start here: DYNA (Dysautonomia Youth Network of America) is an awesome organization, and they have a phone line that they answer during the day. You may want to call them first for advice. Adults call the line all the time. I mean, I am a member of it, and participate there regularly, and I am in my early 30s. Anyways, the DYNA office phone number is: 301-705-6995

I strongly encourage you to call them. Also, please contact me. I also promise that I will help you.

Here are some good references:

Dysautonomia Symptoms: http://dynainc.org/dysautonomia/symptoms

About Dysautonomia: http://dynainc.org/dysautonomia

Living With Dysautonomia: http://dynainc.org/living

Finding the Right Doctor: http://dynainc.org/living/finding-right-doctor

For Newly Diagnosed Patients: http://dynainc.org/living/new-patients

There is now a special board certification/subspecialty in neurology in the United States for Autonomic Disorders (my neurologist has this board subspecialty certification also has an autonomic disorder--so I am tremendously lucky to have him). A handful (about 50) doctors in the US are certified in this subspecialty. But, you really need to get an EMG test, since you are having sensory issues. A neurologist does this test. You really need to be seeing a neurologist regularly if you are having these types of symptoms.

Anyways, to find a neurologist with the Autonomic Disorders subspecialty (you need, at minimum, both a neurologist [most important] and a cardiologist/electrophysiologist who deals with autonomic disorders regularly) go to this website: https://www.ucns.org/Online/Online/Diplomate_Directory.aspx

Under "Please choose a subspecialty" (drop-down menu), select "Autonomic Disorders" and press the blue button "Find"

If you want to get better and stay healthy: do not go to Reddit/Social Media/etc. It is a really toxic place with respect to this illness. People on there are extremely dramatic. Also, avoid the organization Dysautonomia International. The people who run it (primarily women--and I am female myself) are drama queens. They also post inaccurate information on their official Facebook feeds all the time. Also, don't read stuff posted to random blogs. Content that is not moderated about dysautonomia tends to really get wild and can be quite harmful. Trust me on this. If you want to get better with this illness, you have to be careful about what you expose yourself to on the internet.

I hope this helps and I hope to hear from you.