[disabled]

Thank you. Like another poster suggested, I will try to be more considerate next time.

I am off disability, but I can theoretically keep Medicare for life. I was always on traditional Medicare, and my orphan drug (a blood product) was covered under Part D for my condition. I was also insured as a "disabled dependent" via employer-based insurance, through my deceased father's retiree benefit--so it was secondary insurance--which functioned like a supplemental plan.

I have 2 rare immune-mediated neurological diseases affecting my peripheral nervous system (one of them being very rare--which means an HMO from a Medicare Advantage plan is a huge problem if I want to stay alive long term in the US--and generally, you cannot go back to traditional Medicare), plus type 1 diabetes. The very rare neurological disease is believed to have caused the autoimmunity leading to my diabetes diagnosis at age 5.

Anyways, I can tell you that the way things were set up in the US (prior authorizations, prescription formulary restrictions, quantity limits, networks, etc.) were certainly harming my health. I studied electrical engineering for undergraduate, and it is not like I am cannot handle bureaucratic and logistical nightmares.

But, there is a baseline level of stress and anxiety that is present in the US, and you do not have the realistic expectation that you will be cared for there. Not only that, it is a part-time job just to deal with insurance matters. This feeling is basically non-existent within most of the EU, including in places like Croatia. Croatians probably do have the best lifestyle in all of Europe, too.

It's just not worth it.

[bhupy]

> generally, you cannot go back to traditional Medicare

You're always able to go back to traditional Medicare, you just have to wait until the next open enrollment. In fact, after the first trial run with MedAdv, you can switch back before open enrollment if you want. Traditional Medicare is always an option.

Great to hear that you're staying healthy otherwise.

[disabled]

Thank you! :-)

True, but the issue is that medical underwriting is allowed on Medigap (Part B supplemental plans). So, once you are on a Medicare Advantage Plan, you basically cannot effectively go back, due to being unable to obtain a Medigap plan (covering the 20% that part B does not cover), due to having pre-existing condtion(s). The financial consequences of not having a Medigap plan are quite severe for somebody who has a rare disease, if you know what I mean.

As you know, it is a loophole in the ACA. Because I was declared disabled before age 22 ("disabled adult child"), there is a way for me to get Medicaid, for life, effectively, through the Ticket-to-Work program, via the PASS (Plan to achieve self support). Even if I "make to much money to stay on Medicaid", at some point, the Pickle Amendment allows me to stay on it for life, due to the age I was declared disabled at.

But, there are issues with that too, since it is a form of "welfare". You can end up having to pay back the US government hardcore overall. You also get punished for being on Medicaid. For example, some states only allow you to have 4 medications covered by Medicaid. After the 4th active prescription, a type of "prior authorization" is sent to each and every doctor--for some government bureaucrat to make an arbitrary decision whether this medication is being "worthy of coverage".