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by david_l_lin
1929 days ago
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We do not sell personal microbiome, genetic, or survey-related data and don't have plans to do so. We will make every effort to keep your personal data yours. We de-identify all your data so that it can only be analyzed as an aggregate, so while your microbiome data and health survey data contribute to new scientific discoveries, they also remain completely personal. It will be nearly impossible for interested parties (such as insurance companies) to get a hold of your personal information on the Bristle platform and use it as leverage for their pricing. Hopefully this helps relieve some of your concerns, as we have similar concerns around health-related privacy, too! |
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How is it nearly impossible?
From what I understand, this oral "profile" is stored and then provided to the user on demand.
Isn't the general premise that overall health is causally linked to this profile? If the data was monetized differently in the future, couldn't the association between user and this oral profile possibly give insurance companies something to base pricing decisions on?
How could the report itself be anonymized? Send the user a link to a stored report devoid of any and all personally identifiable data and then destroy any and all personally identifiable data associated with the link?
How can anyone trust someone to actually do what they "promise" with their data without extremely punitive regulation?