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by tolien 2009 days ago
Treatment's a matter for a public health service rather than other researchers though, right? There's not much science in another group of researchers taking over to test how penicillin treats syphilis; that's already settled. Access to the affected patients would then be a legal matter - the records would be seized by the police and/or prosecutors and that's a very different kettle of fish to the original example.

For what it’s worth, Tuskegee just happened to be the ethical failure that came to mind because it's been in the media recently (in the context of "why do PoC have reticence to take vaccination", i.e. for COVID-19). There's plenty of other examples where the damage was irreparably done [1, 2] where it would be questionable to hand the participants' personal information over to another group of researchers for further study.

1: https://en.wikipedia.org/wiki/Unethical_human_experimentatio...

2: https://en.wikipedia.org/wiki/Study_329