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by placer 2013 days ago
The subjects were delighted (Edit: See below for actual quote from one of the Pendery team researchers) to be contacted by another research group, and some of them felt the treatment they got in the Sobell group was so shoddy, they ended up trying to sue the Sobell researchers.

Reference: https://www.nytimes.com/1984/09/11/science/panel-finds-no-fr...

1 comments

>The subjects were delighted to be contacted by another research group

Where did you get that they were delighted from the article you linked? Were they all uniformly delighted?

It seems that either way, the original agreement/contract/TOS should govern what can be done with personal medical information.

The reference was for the fact some of the original patients tried to sue the Sobells.

The “delighted” bit comes from Alcoholism: A Review of its Characteristics, Etiology, Treatments, and Controversies by Irvine Maltzman, which goes in to the Sobell controversy in great detail.

Edit: Going back to the book, here’s the most relevant quote from the late Maltzman: “the patients contacted prior to the court injunction all expressed a willingness to cooperate and to be interviewed” Maybe “delighted” was too strong of a word.

Thanks for clarifying.