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by hansbo 2023 days ago
I also had complex partial seizures - borderline, I think, because I retained consciousness, but lost the ability to speak and understand language. I remember going skydiving many years ago, and filling out a form where they asked whether I had disabilities, including epilepsy. I marked that I had epilepsy, and then but the paper at the bottom of the pile. Not sure what they made of it when reading the papers after the fact.

I also did a shift in whether I considered it a disability or not. In the beginning, it felt like just a tiny part of who I was. But as time went on, the seizures increasing in frequency, and the anxiety related to the seizures going up as well, it started to make a larger and larger impact on my life and, maybe more importantly, my self-image.

I think it is interesting how the same thing can seem so different at different points in time.