[mattlondon]

Totally agreed. I wonder what the ethical side of this is... Give someone a pill and they suddenly "unlocked" from locked-in syndrome. How can you not want to give these people these drugs all the time and let them have at least a partially normal existence.

[Nextgrid]

The problem seems to be that their body builds tolerance to it so that even if you give them this medication constantly it gradually stops being effective. However I do agree that these drugs should be available and it's up to the carers to work out a dose that maximizes the amount of time the person is "unlocked".