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by xyzzy_plugh 2080 days ago
> Our EHR enables doctors to measure how patients are doing in between appointments via an integrated patient mobile app to drive personalized, improved clinical decision-making. For example, we can use data science to automatically detect symptom exacerbation or improvement (from patient-reported outcomes or functional metrics such as activity levels) and get them in for treatments at the right time.

The problem with patient-reported outcomes or other metrics, is that you are relying on the patient. This trap already exists for the vast majority of people suffering from mental health issues in the United States: in order to conquer your issues you basically need to not have them in the first place. Navigating (maybe battling) insurance, out-of-pocket bills, finding doctors who will take you seriously, and so forth, is really taxing, and when you are already struggling it can be Too Much.

I saw, second-hand, some of the surveys that Stanford sent to their disabled patient, which I would suspect would be used in the same way. The surveys are tiring, exhausting, and frustrating. It's frustrating to be asked the same questions over and over again while you tread water, and have to admit the same shitty answers, whether it's pain or depression or any other miserable symptom.

I am curious what you are doing here that is wholly different from what most institutions are already doing.

1 comments

Thank you for bringing up this great point - yes, agreed that patient-reported outcomes can be sometimes challenging even though this is the standard of "objective" measurement for mental healthcare! Part of our whole goal is to find additional objective measurements that don't need to rely solely on the patient's reporting. For example, how one uses their phone (have they left the house? are they socializing and in touch with others? etc.) could be telling. By combining different streams of information we can relieve patients, clinicians, researchers of just relying on the types of surveys you talk about to give a more objective view of the patient. We don't know of anyone else taking this comprehensive approach.
This is concerning for people suffering from disabilities and on long term medical leaves, and also where a private disability insurance provider (or even social security!) is paying the patient.

Most disability corps only care about maximizing revenue, and will look for any excuse (legal or not) to cut off a client. Often times they require full access to medical records, so what sort of information is in this records can be, for lack of a better term, life or death.

If a whether or not a patient left the house might be tracked and eventually accessed by an insurance agent, I would be extremely hesitant to use this product, and I know private disability insurance advisors that would be very afraid of this sort of thing, on behalf of their clients.