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by brainless 2081 days ago
I am personally interested in this domain and would like to share something I have been thinking about:

If a platform could separate my personally identifiable bits from my measurement data stream and if I participate in sending anonymous track of my health -

- at a large scale, there would be enough data to derive patterns and then insights (like you mention)

- I could take the generated insights and apply them as overlay on top of my own personal data again

In theory my personal bits never leave my app. But I contribute to a larger data driven improvement of health.

1 comments

Thank you for this!! We so appreciate that you are aligned with the approach. We would love to find interesting ways to return the insights back directly to patients. For example, if you're taking XYZ medication, how do your responses compare to the national average? What other interesting correlations can we make to help you better understand your health? It may be a ways off, but definitely something we're thinking about :)
Yes, that would be really cool. A while back I was thinking about something similar, when I was working on a social network for cancer patients. What if we can connect people by symptoms, medicine they are taking or their side effects, the doctor or facility they are visiting. Connect people to help them get through whatever they are experiencing, but also collect anonymous data to see patterns and offer suggestions.
I would like to think of some of these issues deeply. I don't work in this domain but interested due to personal and family reasons.

Let's stay in touch somewhere if you want.

Yes please, we would really love that! Can you shoot me a note at lucia@osmind.org? Thank you :)