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by pumpmylemma
5549 days ago
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What you described is becoming much more common. I still have concerns, but I'm excited by the promise of websites like http://patientslikeme.com (Disclaimer: I'm actually starting an HN-like website for rare disease people in a week or two; I had (or have) a rare type of cancer called Chordoma.) |
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My contact info is in my profile. I would love to know when this is up.