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by kobbad 2160 days ago
I'm the founder and CEO of Nebula. I think in the not too distant future, everyone will get whole genome sequencing as standard of care. We think it's important to set up the privacy frameworks today around storing and sharing access to DNA. It's interesting because all of the risks of having your DNA data out there are not fully understood yet. And, as a consequence, legislation hasn't caught up to the technology. Should life insurance companies be able to use your DNA? Should schools be able to use it as an admittance criteria? Well, right now the law isn't stopping them from doing so. This hasn't been a huge problem today because, if you're really concerned about DNA privacy, you just won't buy a DNA test. But, sooner than later, you'll need genetic testing to get the right medicines, optimal treatments, best diagnostics, etc. Once whole genome sequencing makes the transition from consumer use cases to clinical ones, many users will be faced with choosing between their health and their privacy. We don't think that's a fair choice and think we need to start working on mitigating the privacy risks today.