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by Nextgrid 2166 days ago
> it’s not a bad idea to try fringe approaches

Fringe approaches would not be considered "fringe" if they were proven to have an effect. Even if it improves your survival rates by merely 1%, it would be still used as part of modern medicine if there was nothing else.

The problem is that the quack makes you believe that it will work, so you're still wasting time trying the "treatment" and potentially suffering its side-effects (not to mention the financial impact). It's worse than not doing anything, since at least the latter means you've accepted your fate and can enjoy whatever time you have peacefully instead of being busy with a quack treatment.

Furthermore, modern medicine isn't inherently hostile to "alternative medicine". If you think about it, all the potential treatments being researched in labs right now (including for covid-19) are still at the "alternative" stage, and if they end up being proven to work they simply become "medicine". What modern medicine is hostile to is unproven, or proven not to work treatments.

If you think you actually have an "alternative" theory that isn't quack, you are welcome to do your research on it to at least rule out any existing reasons why it couldn't work (using existing medical literature), and if the theory still stands by then you are free to engage with the mainstream medical community or study, become a researcher and then test your theory in a safe and controlled environment so the outcome is actually valuable (and will influence further research even if this particular theory doesn't work) and not just anecdotal evidence.

3 comments

This may be true in your experience or elsewhere, but it's patently false in my experience. There's 'standard of care', very narrowly scoped clinical trials, and everything else is "fringe". Some treatment proven effective for cancer? OK, but it wasn't proven effective for this cancer. Oh, it was proven effective for this cancer? OK, but it hasn't been proven effective after partially effective cytoreductive surgery. Oh, it was proven effective there? Yes but it hasn't been proven to be effective after disease recurrence. Oh, it was proven effective after disease recurrence? Ah, but it was only proven effective in germline mutations. Oh it was proven effective on somatic as well? Sure but not after immunotherapy has been tried...

On and on and on and on. The decision tree is so deep and patient communities sliced into smaller and smaller subgroups that we don't have enough people on the planet to 'prove efficacy' for them all (as if such a task is even possible, the most we usually get is evidence of efficacy in similar cases).

Some treatments are considered "Fringe" because there are other [political, structural] hurdles at play that prevent them from going through proper scientific process. Some people don't have time to wait 10 years for government approval, so they'd rather take the chance now.
Testing things is different than practicing things.

You cannot test many things. You also cannot prove many things. Look at nutrition. Determining the cause and effect of a substance on a human body is difficult.

Science is aimed at proving things. Sometimes, in life, that luxury is not available.

You can't test/prove everything, however my understanding is that at least a large part of these quack treatments (if not all of them) have already been proven not being able to work (or being actively harmful) in existing medical literature.
Perhaps you should rethink the concept of "proven not being able to work".