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by oxAAAFFB 2168 days ago
I feel personally wronged by people who stagnate science. I have medical problems that fall through the cracks because of it. I have suffered immensely because of it. Tons of people have I bet. I feel so personally wronged. If it weren’t for that, why would I ever bother caring about this? I wouldn’t have so much venom for slackjaws otherwise...
2 comments

And yet you're still alive and kicking. Rejoice.

I'm a literal lab rat. Late 80s, my disease and the treatment had 95% mortality within the first year (BMT for aplastic anemia). I've had dozens of complications, some life threatening, all miserable. Most recently, I was the 3rd patient to undergo a novel way to use whole body radiation to beat back an autoimmune disease (TBI for chronic GVHD).

Sure, a lot of my care providers have sucked. And insurers would prefer I'd just die already. And I've definitely been grumpy.

And yet I'm still alive and kicking.

Life is a gift. Every day is a celebration.

It's very, very hard. But if at all possible, I encourage you to find a way to transmute your anger and outrage into action.

For a while, I channeled my energies into healthcare IT and election integrity. Before that, I cosplayed as a treehugger, trying to save endangered salmon. Maybe I did a little bit of good, nudged the needle.

Was it worthwhile? No clue. But everyone needs a hobby, so at least the work kept me distracted.

>I have medical problems that fall through the cracks because of it. I have suffered immensely because of it.

Not surprising at all, this is generally the time when people see the incompetence, arrogance and lack of integrity of the 'experts'. From then on all expert opinion is suspect.