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by jdoss
2281 days ago
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I was just thinking the same thing. My 5yo son has a wimpy immune system and asthma. We have spent some scary times in the ER/PICU when he gets a bad lung based cold. I am thinking about how I can convert one of my old CPAPs into a ventilator if I can't get him into a hospital to get the care he will need due to the healthcare system being overwhelmed. It should be obvious, but I will say it to be clear. This would be a last resort kind of thing on my end. The last thing I want to do is "wing it" with any kind of medical care on my kids. |
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There are forums out there that teach you how to adjust the settings on your CPAP/APAP/BiPAP machines, including how to get into the "clinician mode" to make REAL adjustments (e.g., like pressing and holding two buttons down on machine for couple seconds puts you into clinician menu settings). There is also software out there that will let you download the data from the SD card in most machines to your computer and analyze it. This isn't terribly critical, but if you have motivation / need it is handy to know how to do this. Makes titration much faster/easier and with less trial and error.
sleepyhead is the name of software (open source, no long maaintained unfortunatly but entirely functional still). Just google for sleep apnea forums.
Good luck with your son and rest of family!