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by johnpowell 2287 days ago
For sure.

When I first saw the oncologist he made me meet with a lady that walked me through chemo. She laid out that explicitly that I am such a slender guy that I will die without the tube. And my kidneys will fail since I will probably not be able to get down water. I would later learn (PET scan) that I was born with one kidney.

I think they knew that letting me know that they could easily remove it would increase the odds that I would get it put in. To make it seem like a trivial thing. If you don't like it we can just pop it out and things go back to normal. Easy. Might as well have it put in, why not? Everyone had the same spiel.

And they were right. It is easy to remove. I accidentally removed it myself one morning. And I lost my shit. I shoved it back in and my stomach contents started pouring all over the carpet since the other end was open. I was panicked.

It took about five minutes to shove back in and it required a significant amount of force. The thing is the hole closes up fast. They said if it comes it you have a hour to get to the ER before we have to start from scratch. And I don't drive. And nobody that drives was home. And I live in the burbs`. So I had to just get it back in there.

Fun fact.. Is you toss some lube on the tube it goes right in. I now keep KY in the bathroom drawer. But that was terrifying.. That is how I eat. And getting the it put in was pretty fucking painful. I had to resolve to situation.

1 comments

Ah I didn't realise it was something people exercised choice over and needed cajoling in to.
I had inquired into why people refuse and the radiologist pretty much said that religion seems to be a major factor.

He also asked me about the "gun situation" where I live. We have a lot of guns but they are locked in a safe. They are for turning animals into jerky. We don't sleep with guns under pillows. We don't even lock our doors.

But he was concerned about my access to suicide machines. Five weeks later I would understand his question.

Informed consent is a very important part of medical care, and patients should exercise choice wherever possible.