[1996]

> Small cute kids are dying in pretty horrible ways because of this price all over the world.

No, they are dying because other companies have not found ways yet to duplicate that. In the end, it's all just information - recipes if you will. Nothing magic. When most drugs just become gene therapy, I'd suspect it will be a matter of days until they are copied and released for all - like movies high quality rips.

Only one thing is needed: a marketplace, so companies can compete on price for the customers who leave feedback to select the best providers.

This won't happen here, because of the FDA, regulations etc. But I don't see why a country with more appetite for risk (and thus money) will not become a hub for medical tourism, 1 flight away, with drugs and treatments cheap thanks to competition, and readily available thanks to the lack of regulations.