[ekianjo]

There is also an opportunity for public databases of patient outcomes (post marketing) that we would all greatly benefit from. A lot of that data is still discussed behind closed doors and authorities are also to blame because it is their prerogative to force data to be open if they wish to.

[pintxo]

We are working on it, but financing seems to be tricky for such an endeavor.

[jcims]

Sounds like a FUD magnet but I agree there would be major upside. Edit: To clarify, publishing individual patient outcomes publicly could pretty easily be spun as a privacy risk to trial participants and/or have a chilling effect on enrollment.

I’m personally invested in seeing something like this happen but if not approached defensively it could be vulnerable to getting shot down and made an example of.