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by toomuchtodo 2353 days ago
It's really not that strange. No different than people paying $40k-$130k for Tesla vehicles that send data back with no compensation to help them improve their autonomy efforts, or users of social media products giving their content away for free (Facebook, Insta, Twitter, Reddit) thereby creating the platform's value. Lots of good business to be had taking something of little value and then selling for a greater value in some larger aggregate (which is even as low tech as your local metal recycling business; you want a cut of the revenue from the aircraft your aluminum ends up in?).

The consumer benefit is that it's only $100-200 for a 23andme selective sequence, versus the $1000 for a full sequencing someone like Veritas charges. It's brilliant that 23andme can turn health and ancestry curiosity into a pharma business, and they should be commended for their work.

1 comments

Yeah, don't really like that either. At least with the other services, the user arguably sees an improvement -- better community, better car, whatever. Your genetics are what they are; I doubt (but might be wrong!) 23andMe is sending out free drugs to all the participants.

I'm not sure how Veritas does it, but 23andMe only takes a few of the 600K SNPs available to analyze. PBS had a good bit on it, you can find it on YouTube. They release your raw data, but make no guarantee of accuracy, which is crazy considering some people take drastic, irreversible medical action (double mastectomy, hysterectomy for the BRCA mutation) based on the results. I'm sure they disclaim that, but crazy nonetheless.

The availability of the drugs is the benefit, not whether they are provided to you free or not. Fix healthcare policy if you want that reality.