[pkaye]

I as chatting with someone in UK on Reddit who has some rare disease and trying to see what he could do to improve from it. Apparently he had reached a dead end with the UK medical system but his research indicated there are some doctors in the US who knew more and was desperately trying to find a way to get the same treatment. Sadly all his parents/sibling died from that disease so he had no support network. I felt really bad for him but had no way to help him. All I could suggest is he speak to a patient advocate. What would you have told him differently?

[mathieuh]

The NHS has been fucked by consistent cuts by the Tory government. Unfortunately they just don’t have enough money to cater for things like this. I would write to my MP but I know that’s just going to be a fart in the wind.

I have my own experience with this, I was/am a heroin addict and it took 12 months to get into any treatment at all. And A&E wait times are increasing year on year, either this winter or next there is going to be a crisis. Already we’ve come close.

I still maintain that for the vast majority of people and ailments the NHS is perfectly adequate, it’s just hobbled by the government at the moment. You could conduct a poll of almost any demographic in the country and they would say they would be willing to pay more taxes if they were ringfenced for the NHS.