[ambrop7]

Hope you're better. I had a similarly horrifying experience myself. More and more pain pretty much everywhere, tiredness, headaches, GERD - almost every "vague" symptom you could think of, slowly getting worse over months and years, and no answers from multiple specialists. Luckily it wasn't Lyme (which I got tested for). After getting a large panel of lab tests assembled after weeks of online research, I found high calcium levels, and with follow-up tests diagnosed myself with Primary Hyperparathyroidism (at 28 years old, which is rare). Flew to the USA a month later for surgery (the place where they do it best, the Norman Parathyroid Center, is essentially incomparable to everyone else) and now several months later I am much better.

[Arete314159]

That's amazing that you figured it out. I see a lot of stories like this lately and I wonder why patients have to become diagnosticians for themselves...

As for me, thank you for your kind words. I'm still struggling, and I'm going to an out of state specialty clinic in September. Hopefully they'll do something that helps.

[tapland]

You can have hyperparathyroidism at any age. Mine was found at 15 and at 30 calcium levels haven't been high enough to justify surgery yet (but other tumors stemming from the same root cause have).

How much did you pay for surgury? It sounds like going to the US and paying out of pocket would be very cost prohibitive.

[ambrop7]

Paid 13200 USD (they don't publish the price on their web page any more, but I suppose it didn't change much). Supposedly their price is one of the lowest (and you get the best care).