[azinman2]

If it’s rare then most doctors probably ignored it for that very reason. The intern, not “knowing better,” likely thought about it as they recently learned about it.

Why distrust doctors when it was a doctor (in training) that discovered it, and it took other doctors to treat it?

Uncommon things are a blind spot for most medicine, just like they are in other fields as well. For example, in CS rarely do we ever expect a compiler or OS or libc bug, but they do happen.

[vladus2000]

If one or two doctors missed it, I would be ok, but basically everyone I saw ignored it. My neurologist thought something else might be causing it and sent me somewhere else to get it looked at. That was about half way through the process, so the doctors were being told that someone thought something else was going on and they still missed something rather easy to see.

I have had other issues where doctors thought I was lying to them, although no others that ended up with any serious consequences, just having to go see someone else.

I also had a doctor recommend dangerous surgery for a condition I ended up not having. Which, yes, getting a second opinion is good, but had I not done that, I would have had major surgery on my head that has a roughly 10% chance to deafen you for life.

I have the misfortune of having multiple rare issues (on more than just my eyes) and as a result, dealing with western medicine sucks.

My father has similar issues, so I have seen it with him too. For example, doctors let his appendix explode inside of him after he went into ER twice complaining of extreme pain in his abdomen. It exploded a few hours into the second visit and he almost died.