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by throwaway9298 2647 days ago
I have a genetic/hereditary disability which has progressively deteriorated over my working career. I took the decision 10 years ago to quit my senior role at a FTSE100 and do a startup instead so that I had full control over my work load and work environment.

Fast forward to today, and I'm now only able to work for a few hours a week. The business I founded is mature, and largely manages without my input.

It's hugely frustrating not being able to do more. Given the limits I have on my output, and that I have no sensible idea of what the future holds, I almost exclusively do stuff that (a) really interests me and (b) is rewarding for me personally.

Inevitably a chronically ill person is likely to be/become depressed: I found anti-depressants really useful. I had no idea I was so depressed.

I've tried counseling, it's just not for me.

I'm actively engaged with the experts in my condition, and have gained an expert knowledge. No one else will do this for you. Neither will anyone else will take a holistic view in terms of your care.

I have a fantastically supportive SO and rarely stop to consider myself as disabled -- this is a doubled edged sword as it leads to boom and bust.

HTH in some way. (Edit - formatting, clarity re startup)

2 comments

It's awesome to hear about your startup, I wish I had that kind of courage (or the talent).

I personally have trouble wherever I move finding a good counselor. I've often just walked away from it, but then I inevitably miss it and am glad when I find "the one" because I am a very indecisive person. It's so true about the holistic care. Taking care of yourself takes so much effort.

100% agree with needing to own your own care. I have had an illness most of my life and learned this the hard way. For my new startup, I'm trying to address this head on - building an app that connects people dealing with chronic illnesses. Looks like you are also a YC alum. Wanna chat?