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by sz4kerto 2682 days ago
Plug: this is what we're trying to solve (amongst other things) at Patients Know Best. Giving the control back to the patient (you should always have full access to all data about yourself, and be able to control sharing of these records). We're mostly present in the UK at the moment.
2 comments

The question is who stores the data. If you manage to let the patients keep it locally or in physical media it's insane. If you are keeping it for them it's the same worries as any other service.

This was not journals though, but calls to nurses.

We store data for you in a way that's considerably more secure and paranoid than how other providers work -- quite similarly to CryptDB. We can access your data when serving it to you, but your medical data is never stored on disk with a key that we store (it's derived from your password, and we throw it away after serving you through HTTP).
More would be solved with simply the ability to, on a simple request and without justification, delete all data associated with yourself. Including all shared copies.