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by nradov 2727 days ago
Support the OpenNotes movement. Patients have a legal right to view their records (with some limited exceptions). But it needs to be easy and happen by default rather than as a special request.

https://www.opennotes.org/

1 comments

Forget "view". I want to own my records. It's my personal data that I've enlisted a professional to gather on my behalf.
Then their interpretation/diagnosis would be their information, arrived at by processing your raw data through their experience and education.
Once you view, you will own.

(Or so many years of experience with DRM says ;-)

can you elaborate on the distinction you are making between viewing and owning?
I presume they want to have control over who can access the file.